ALS Ice Bucket Challenge Progress
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ALS Accelerated Therapeutics (ALS ACT)

ALS ACT is a novel academic-foundation-industry partnership with ALS Finding a Cure®, initiated with researchers from General Electric (GE) Healthcare and four academic Northeast ALS Consortium (NEALS) sites to accelerate treatments for people living with ALS. Through a multi-pronged approach, each partner will contribute to expediting clinical trials in ALS.

The ALS Association Commitment

The ALS Association committed $10 million that was matched by an additional $10 million by ALS Finding a Cure. Funding was announced in October 2014 that directly resulted from donations from the ALS Ice Bucket Challenge.


ALS ACT is aimed at accelerating diagnosis, speeding development of new treatments for people with ALS and removing roadblocks to finding a cure for ALS.

How ALS ACT advances the search for a treatment for ALS

Key Players

ALS Finding a Cure® was founded in 2014 by noted philanthropist and Founder and Chairman of Conair, Leandro (Lee) Rizzuto, as a tribute to Christie Rizzuto, Lee’s daughter-in-law who was diagnosed with ALS in 2009 at the age of 41. Under the joint leadership of Lee Rizzuto and Peter N. Foss, ALS Finding A Cure® is focused on identifying the gaps in the scientific understanding of ALS that are preventing the development of a cure.

Top ALS investigators contribute to ALS ACT, including: