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and Caregivers Where to find help
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The North Carolina Chapter Grant Program assists North Carolina families with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to, home care assistance (respite), travel costs related to ALS clinics or research, home modifications, auto modifications, communication devices, environmental controls and generators for invasive or non-invasive breathing assistance.
*PLEASE READ THIS BEFORE COMPLETING YOUR REQUEST *
→ TO BE ELIGIBLE FOR THIS GRANT, YOUR PRIMARY RESIDENCE MUST BE IN NORTH CAROLINA AND HAVE A VERIFIED DIAGNOSIS OF ALS
Important Information
PLEASE FOLLOW STEPS BELOW TO BE SURE YOU ARE SUBMITTING REQUEST CORRECTLY
Step 1 - Check ALS Eligible Expenses List to make sure receipt(s) you are submitting are ON THE LIST of eligible expenses (if they are not on the list, they are not eligible) AND be sure receipts are between the acceptable date ranges for current period (dates below).
Step 2 - Complete Request for Funds form (please complete entire form),
Answer impact questions, Read each statement and put a check mark where it is required before you Read and Sign responsibility statement.
Step 3 - Attach COPIES of Receipt(s) that have already been paid for- You can use Mileage log or Respite Care Provider log if needed as receipts. ALL RECEIPTS MUST INCLUDE CLEAR DESCRIPTION AND DATE. Statements are NOT a form of receipt. MUST include "description" and amount paid.
Step 4 - Return by fax or email - must be in the form of a scanned document as an attachment. (Please do not send pictures included in the body of email).
Please click on the following links for instructions on how to scan and send using you smart phone:
Iphone users click here / Android users click here
You can also mail the Request for Funds form with copies of receipts (Info provided below). PLEASE DO NOT SEND IN ORIGINAL RECEIPTS – SEND COPIES ONLY and retain a copy of your paperwork. If you need extra forms, please download below. You can also request by email or phone from a Care Services staff member.
See dates below. Do not wait until the last minute, if there is an issue with your submission and is received on the in-house date, you will not qualify for reimbursement for that period.
Step 5 - Recieve check which can take up to 6 weeks. Checks are void after 90 days and cannot be re-issued. Please deposit when you receive. If you do not receive check after 6 weeks, please contact Claudia Beirne at claudia@alsnc.org or 919-390-0125.
Once the period has closed we are not able to go back and reissue check, so please make sure you call if you have not received check before the period ends.
>>IMPORTANT DATES TO REMEMBER- LATE REQUESTS WILL NOT BE ACCEPTED, NO EXCEPTIONS <<
Grant Periods |
Request for Funds form
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Receipts must be
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MUST be postmarked by: |
MUST be received In-House by: |
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1st (Jan. 21 – July 20) |
HARD DEADLINE: July 15 |
HARD DEADLINE: July 20 |
Jan. 21 and July 20 |
2nd (July 21 – Jan. 20) |
HARD DEADLINE: Jan. 15 |
HARD DEADLINE: Jan. 20 |
July 21 and Jan. 20 |
Download Current Request for Funds Packet This includes procedure and all forms below
Download Current ALS Eligible Expenses List Please be sure to check this form to make sure expenses qualify for reimbursement
Download Current Request for Funds Form This form MUST be completed, attached to an invoice/receipt and submitted for any reimbursements to be processed.
NEW - Fillable Request for Funds Form which can be completed and saved as a PDF and then emailed
Download Current Respite Care Provider Log This form is used by non-professional (cannot reside in pALS’ home) respite care providers. It must be completed by the care provider and sent in with Request for Funds form.
Download Current Mileage Log This form is used to submit reimbursements for Mileage OR rental of vehicle/car service to and from ALS clinic appointments, North Carolina clinical trial appointments (when travel stipend not provided), Feeding tube, invasive ventilator and Baclofen pump procedures appointments ONLY. No other appointments qualify.