ALS Ice Bucket Challenge Progress
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
Browse the links to the left and below to find more information and answers to many questions, as well as a plethora of additional resources to assist you.
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated. Please help us by enrolling today.
It is also important to learn about your insurance coverage, healthcare facilities and how to obtain support for yourself and your family. This site provides a list of ALS Association Chapter-run support groups and affiliated found here.
Questions may also be answered by contacting our chapter.
A short set of essays written by someone with ALS for others who have just been diagnosed with the disease. It tries to anticipate the most common issues faced by persons living with ALS in the first weeks and months following the diagnosis, and point you to helpful sources of support.
