ALS Ice Bucket Challenge Progress
Our Chapter empowers people with ALS and their families by offering a wide variety of programs and services. Our services are often changing and expanding as we grow, so please check back often to make sure you are taking advantage of everything we have to offer.
Our Care Services Staff
Our staff of compasionate, experienced ALS professionals and Social Workers are available to help educate and support people living with ALS and their families. Our staff is available Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information.
Kara Cantoni, OTR/L
Vice President of Care Services and Advocacy
Email: kara@alsnc.org
Phone: 704-412-3777
Claudia Beirne
Director of Care Services Operations
Email: claudia@alsnc.org
Phone: 919-390-0125
Programs: Equipment Loan Program, North Carolina Chapter Grant, Support Groups
Alexandra Adams, BSW
Care Services Social Worker
Email: alex@alsnc.org
Phone: 336-757-2000
Clinics: Wake Forest Baptist ALS Clinic, Salisbury VA ALS Clinic
Lily Cola, MSW
Care Services Social Worker
Email: lcola@alsnc.org
Phone: 919-390-0120
Clinics: Duke ALS Clinic, UNC ALS Clinic
Joanna Nunez, MSW, LCAS, LCSW
Care Services Social Worker
Email: jnunez@alsnc.org
Phone: 910-390-0851
Clinics: New Hanover ALS Clinic, Vidant ALS Clinic
Alicia Richardson, MSW, LCSW
Care Services Social Worker
Email: alicia@alsnc.org
Phone: 919-390-0119
Clinic: Atrium Neuromuscular/ALS-MDA Center
The ALS Association North Carolina Chapter holds support groups each month for persons with ALS, family and loved ones to provide support and to connect them with resources and individuals that can support them along their journeys. Click here to learn more about support groups.
For a list of the support groups we currently offer, please click here.
We are moving our peer to peer program to a Facebook Platform. This will be through a private facebook group that you can join to connect with others who are affected by ALS and their familiies. This group is hidden and only members are able to access or see this group and you must join, if you are not a member already, our chapter Facebook page through this link: https://www.facebook.com/alsncchapter , then click on the "More" tab, choose "groups" and choose this group and "join". Chapter Administrator will approve request within 24-48 hours.
For more information, please contact Alex Adams at alex@alsnc.org / 336-757-2000.
For group safeguards and rules click here
The grant program assists families in North Carolina with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to: Respite Care Assistance, travel costs to ALS clinics and research, home modifications, auto modifications, communication devices, environmental controls and generators for invasive or non-invasive breathing assistance. Recipients may apply for two grants per year in the amount of $750 each.
For more information or to apply for a grant, please click here.
The Equipment Loan Program operated by the North Carolina Chapter houses loaner durable medical equipment in four locations throughout the state which include power wheelchairs, manual wheelchairs, transport wheelchairs, rollators, power hoyer lift and shower wheelchairs. Equipment is delivered and picked up free of charge. If and when the equipment is no longer needed, it can be returned to the Chapter for use by other person living with ALS.
For more information about borrowing or donating loaner equipment, please click here.
The Chapter care services staff is available for professional in-services to nursing facilities, home healthcare agencies, hospice and palliative care organizations. Our in-services utilize PowerPoint/video presentations and discussion.
For information on how to arrange an in-service training, please contact Lily Cola
All of the services for our ALS families are available due to the generosity of many groups and individuals. By donating to our Chapter, you help us to help those families. Join a Walk team, plan an event that benefits the Chapter or just make a donation. As a non-profit, everything we do depends on our generous donors.
If you are interested in supporting our services, please click here.
