Public Policy Priorities

Our advocacy work focuses on educating and mobilizing members of Congress and the Administration in a nonpartisan way to achieve our mission of discovering new treatments and a cure for ALS, and serving, advocating for and empowering people living with ALS to live their lives to the fullest.

The ALS Association is aggressively advocating for legislative priorities that will help to:

Find New Treatments and Cures

Federal funding for ALS research must be expanded exponentially to provide new treatment options to cure and prevent ALS. Federal research dollars need to be focused on discoveries that will improve the lives of people living with ALS today, while we search for ways to end ALS.

The federal government must act with urgency to support ALS treatment development and approval.


Congress must act to create more opportunities for people living with ALS to access new and emerging ALS treatments and support the search for cures.


Optimize Current Treatments and Care

The federal government must ensure coverage of new ALS treatments.


Federal and state governments must support and fund programs for people living with ALS that increase access to specialized ALS care both during and after the COVID-19 public health emergency.


Prevent or Delay the Harms Associated with ALS

Congress must act to improve the lives of people living with ALS their loved ones by supporting policies that will positively impact their lives.


State governments must support and fund programs for people living with ALS and their loved ones that improve their lives.