About Our Chapter
Since its inception in 1988, our local chapter of The ALS Association is the central source for services and education for people with ALS, their families, caregivers, and healthcare professionals in all of North Carolina. The progression of ALS varies significantly from one person to another. Responding to each person’s individual needs, our local chapter is available to provide vital services and reliable information through strategic community partnerships.
A sampling of programs and services available, free of charge:
- On-staff Care Services Coordinators who offer individual support to assess needs, connect with local resources, and help families plan.
- ALS Association Certified Center of Excellence partnerships with Atrium Health Carolinas Medical, Atrium Health Wake Forest Baptist and Duke Health. We also have an ALS Association Recognized Treatment Center partnership with ECU Health (The Jim "Catfish" Hunter ALS Clinic).
- ALS Association Clinic partnerships with Novant Health New Hanover Regional Medical Center, UNC Health and the VA Health System.
- Medical Equipment Program in partnership with Stall's Medical and Adaptive Vans to loan equipment to aid in daily living activities and with mobility and independence.
- Chapter Grant Program that funds a myriad of reimbursable, ALS-related expenses such as respite care, co-pays for healthcare costs, home modifications, and more.
- Caregiver Support Program to provide family caregiver-focused support groups and training through our Annual orth Carolina ALS Caregivers Conference.
- Monthly Support Group Program for people living with ALS, family members, and friends.
- Bereavement Support Program for family members and friends who have lost a loved one to ALS.
- Education and Outreach to healthcare professionals, home healthcare agencies, and the community with updates on current ALS needs and solutions.
The ALS Association North Carolina Chapter has been committed to serving people with ALS and their families as well as working to find a cure for ALS since June Thompson founded the Chapter in 1988. In 2000, the Chapter expanded its services to include South Carolina and became known as the Carolinas’ Chapter. In August of 2002, the Chapter was renamed the Jim “Catfish” Hunter Chapter to honor a North Carolina baseball legend and to bring further recognition to our cause. In early 2006, a new South Carolina Chapter was formed and in July of 2016, we became known as the North Carolina Chapter once again.
Jim "Catfish" Hunter Chapter Named Chapter of the Year for Second Year in a Row
North Carolina's Jim “Catfish” Hunter Chapter Named Chapter of the Year
Catfish Chapter President Named Advocate of the Year