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Golden West Chapter - In the News

Be sure to register to receive our monthly enewsletter and receive news updates and other highlights from the Golden West Chapter of The ALS Association. You can also subscribe to our many social media channels and networks.

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For any media inquiries, please contact us at or call our media hotline 415-967-2572.


  • ABC 23: Bakersfield Dutch Bros. locations to donate to ALS Association for every drink sold

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  • New York Times: Roberta Flack Has A.L.S. and Can No Longer Sing, Her Publicist Says

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  • USA TODAY: What is ALS, the rare disease making it 'impossible' for Roberta Flack to sing?

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  • Washington Post: ALS, a rare but deadly disease, can silence anyone. Here’s what to know.

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  • The SF Chronicle: Roberta Flack reveals ALS diagnosis, making it ‘impossible to sing’

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  • Fox 11 News: Hundreds march in Los Angeles to raise ALS Awareness

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  • The Golden West Chapter of The ALS Association: Spotlight on Linda and Tom Waldrop

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  • The Golden West Chapter of The ALS Association: Spotlight on The Ron Malone Care Services Fund

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  • Denali Therapeutics Announces DNL343 Interim Phase 1b Data in ALS and Entry into the HEALEY ALS Platform Trial

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The Golden West Chapter of The ALS Association: The 2022 Greater LA Walk to Defeat ALS Takes Another Step To Unlock Lou Gehrig’s Disease
November 1, 2022

NINDS: Strategic Plan from National Institute of Neurological Disorders and Stroke
October 10, 2022

FDA: New Rare Neurodegenerative Disease Grant Program
November 1, 2022

Business Wire: Verge Genomics Initiates First-In-Human Dosing in Phase 1 Trial of VRG50635, a Novel Therapeutic for Amyotrophic Lateral Sclerosis
October 31, 2022

The Golden West Chapter of The ALS Association: Honors champions in the search for treatments and cures for ALS
October 24, 2022

Hundreds coastside turn out Saturday for Walk to Defeat ALS
October 9, 2022

PREVIOUS HEADLINES (through 09/29/2022)

Important Update: FAQ’s about RELYVRIO (AMX0035)
September 29, 2022

FDA Approves New Treatment Option for Patients with ALS
September 29, 2022

ALS drug wins FDA approval despite questionable data
September 29, 2022

A message from Keith Verville, ALS Ambassador
September 27, 2022

Hawaii News Now: 2022 Hawaii Walk to Defeat ALS
Saturday, September 17, 2022

Community comes together to raise awareness on ALS
September 17, 2022

HPR President José Fajardo on living with ALS, new drug under FDA consideration
September 15, 2022

Humanitarian loses fight with ALS
August 24, 2022 

Researchers identify possible target for a type of sporadic ALS
August 30, 2022

A message from Mika Kapuwai, familial ALS advocate
August 20, 2022

Public Comments Filed As FDA Reconvenes Advisory Panel
August 23, 2022

Pat Dolan: Mapping the future of ALS Care, Cure and Community
August 19, 2022

Tell Medicare Why Elevation Matters to You
August 15, 2022

Congress Passes Law That Will Help Reduce Financial Burdens of Living With ALS
August 12, 2022

Advancing the Science of Preventing ALS
August 12, 2022

Seeking Clarity and Urgency in the FDA's Action Plan
August 4, 2022

Cytokinetics and The ALS Association Announce Release of Updated Pro-act Database
August 4, 2022

Cytokinetics and The ALS Association Announce Release of Updated PRO-ACT Database Including Data From Cytokinetics’ Completed ALS Clinical Trials
August 4, 2022

A message from Laura Miller, ALS Ambassador
August 4, 2022

Vin Scully Narrates The Catch
August 2, 2022

The 2022 Central Coast Ride and Rally to Defeat ALS® Takes Another Step To Unlock Lou Gehrig’s Disease
July 25, 2022

A message from Leonard "Leo" Snyder, Veteran and person living with ALS
July 22, 2022

49ers Unveil 2022 Training Camp Schedule Presented By SAP
July 12, 2022 

FDA Shares Plan for ALS, Other Neurodegenerative Diseases
July 1, 2022

Mitsubishi Tanabe Pharma America Announces Long-Term Findings from Post-Marketing Safety Study of RADICAVA® (edaravone)
June 29, 2022

San Francisco Giants Partners with ALS Organizations for the 2nd Annual Lou Gehrig Day
June 9, 2022

New 12-Month Tofersen Data Presented at ENCALS Meeting Show Clinically Meaningful Benefit in People With SOD1-ALS
June 3, 2022

Cyborg throws 1st Pitch for the Dodgers on Lou Gehrig’s Day
June 2, 2022

MLB & Dodgers Celebrating 2nd Annual Lou Gehrig Day
June 2, 2022

Second Annual Lou Gehrig Day on June 2nd
June 1, 2022

Previewing Lou Gehrig Day
June 1, 2022

Elex Michaelson of Fox 11 News for winning the “Golden Mic” Award
May 21, 2022

Cytokinetics and the ALS Association Renew Partnership to Advance the Fight Against ALS
May 18, 2022

Ken Paves: My Mother Was My Everything
May 8, 2022

Spotlight on...Lynn Giovannelli, Susanne Miller, and Melissa Stephens - Sisters, Mothers, and Champions for the ALS community
May 5, 2022

San Francisco's Women Artists Gallery seeks to inspire the community to participate, advocate, and donate throughout May's ALS Awareness Month
April 19, 2022

Spotlight on… Mari Winsor and Kristi Cooper: History-makers, Trailblazers, Powerhouses, and Storytellers
March 31, 2022

Spotlight on…. Marsha Maytum, FAIA, LEED AP: A Leader through Design, Social Justice and ALS Advocacy
March 31, 2022

Spotlight on … Eugenia “Jane” Shvartsman Student Event Chair, Jim Tracy 5k to Defeat ALS
March 24, 2022

Six Drug Development Projects Awarded Nearly $3 Million By ALS Association
March 21, 2022

Emerge Law Group: Four Organizations Dedicated to Disability and Patient Rights Join in the Fight for Terminally Ill Californians with Physical Disabilities
March 4, 2022

A message from Miles McConnell: Cherish Every Moment with Those You Love
February 28, 2022

STAT:Scientists Take Key Step Toward Unraveling the Genetic Roots of ALS in a Pair of Studies
February 23, 2022

ALS News Today: FDA, Amylyx Meeting to Review AMX0035 for Possible Approval
February 21, 2022

A message from Trish Rice: Cherish every day and #VoiceYour Love in honor of those impacted by ALS!
February 26, 2022

The Mercury News: High School Football: Five Takeaways from 47th Wedemeyer Classic
February 7, 2022

Neurology Today: Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms
February 4, 2022

Patch: Los Gatos To Host Annual Charlie Wedemeyer All-Star Football Game
February 1, 2022

NPR: Progressive Activist Ady Barkan Says His ALS Has Increased His Platform
January 30, 2022

AP News: Universal Health Care Bill Advances in California Assembly
January 11, 2022

Polynesian Football Hall of Fame: Charlie Wedemeyer - Polynesian Football Hall of Fame Enshrinement Video
January 28, 2022



For other news and articles from last year, please visit our archives