ASK ME: The Importance of Multidisciplinary Care in ALS
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Date |
User Response |
|---|---|
| 05/20/2022 | User Provided No Response |
| 05/24/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/23/2022 | Please discuss the length of the appointment and reason(s) why its important for patients to stay as long as they can and take advantage of the experts/team. Thanks |
| 05/20/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 05/22/2022 | The best way to use a cough assist machine |
| 05/21/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/25/2022 | no |
| 05/21/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 05/04/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 05/24/2022 | User Provided No Response |
| 05/24/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/20/2022 | No |
| 05/25/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 03/30/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/08/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 04/19/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 03/30/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/21/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 04/21/2022 | The events/activities NOW DOES NOT FULLY grasp children's attention like it does with adults. Can we create more fun-filled activities for families with little ones? This may help them be fully aware of ALS & could motivate them to be caregivers too. |
| 05/08/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 03/30/2022 | User Provided No Response |
| 05/20/2022 | Please address the coordination between being a patient of an ALS clinic, and then the timing of transitioning to palliative and then hospice care. |
| 05/25/2022 | Any updated information on access to AMX0035 Any tips or advice for caring for pneumonia recovery, fluid retention, and swelling? |
| 05/20/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/03/2022 | No |
| 05/20/2022 | User Provided No Response |
| 05/22/2022 | User Provided No Response |
| 05/25/2022 | Interested in the Bioness functional electronic stimulation device. A fellow member of a PLS Facebook group in CA has worked with her PT and insurance to get it paid for and is walking better. Thoughts? |
| 05/04/2022 | User Provided No Response |
| 03/21/2022 | test |
| 05/23/2022 | User Provided No Response |
| 03/30/2022 | test |
| 05/25/2022 | Amx0035 open label extension |
| 05/25/2022 | User Provided No Response |
| 05/19/2022 | In the event I can no longer get myself out of bed, what steps do my family need take to get me up? Do we call a caregiver, 911, who? |
| 05/25/2022 | User Provided No Response |
| 05/10/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/20/2022 | My wife has ALS and she is now at the point where she can no longer walk and has very use of her hands. So my question is how or where can i go for more info regarding in-home affordable care? |
| 05/22/2022 | I am interested in hearing more about this topic with my ALS/FTD, especially since I will be relocating soon to the Masonic Village in Elizabethtown, PA. Any assistance on the best way to do this would be helpful . I will be close to Philadelphia. |
| 05/23/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/04/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 05/21/2022 | In my experience with 2 healthcare systems, there are differences in multi-disciplinary team make up (one has psychologist other doesn't) and execution (one refers you to specialists like PT/OT and the other works with you personally). What's best? |
| 05/20/2022 | User Provided No Response |
| 05/08/2022 | User Provided No Response |
| 05/09/2022 | No |
| 05/21/2022 | User Provided No Response |
| 05/09/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/21/2022 | Are groin pain and leg pain common symptoms of ALS? |
| 05/20/2022 | User Provided No Response |
| 05/21/2022 | User Provided No Response |
| 05/21/2022 | User Provided No Response |
| 05/21/2022 | User Provided No Response |
| 05/25/2022 | What do I do the day my brother tells me he can't get up or walk anymore who do I call? |
| 05/25/2022 | What do I do the day my brother tells me he can't get up or walk. Who do I call? |
| 05/25/2022 | What do I do the day my brother tells me he can't get up or walk. Who do I call? |
| 05/23/2022 | User Provided No Response |
| 05/24/2022 | User Provided No Response |
| 05/21/2022 | Not sure if its covered but curious how best to use a cough assist machine. |
| 05/23/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 05/24/2022 | 1. Treatment Options (medications, stem cell treatment, etc.) 2. Has regular exercise and/or physical therapy shown any promise in slowing the progression of ALS? 3. Availability of clinical trials of promising medications |
| 05/24/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/24/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/23/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/25/2022 | User Provided No Response |
| 05/25/2022 | My wife was recently diagnosed. Just looking for any and all info that may be helpful. |
| 05/25/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |
| 05/20/2022 | User Provided No Response |