I'm participating in the ALS Association's CEO Soak to raise funds and awareness to help fight back against this disease. In a reprise of Ice Bucket Challenge nearly 10 years ago (see the photo!), I will GET SOAKED for ALS once again.

People with ALS can go from perfectly healthy to quickly being unable to move, swallow, or breathe. It can strike anyone at any time and there is no cure.

I am extremely fortunate to be able to work with a brilliant and dedicated team at Arbor Biotechnologies to tackle this devastating disease using a gene editing technology that has never been used for this disease before. It is challenging and ambitious work, but we have taken up this challenge in the hope that one day ALS will become a livable disease.

Through your gift to the CEO Soak, you will help us to continue providing hope and help to those in our community living with ALS and their caregivers, while ceaselessly searching for new treatments and a cure.

I know you have been together with me in this journey directly or indirectly over the years and I appreciate it!

With many thanks,

Chee Yeun

ABOUT ALS 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.

ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Every 90 minutes, someone is diagnosed with ALS, and every 90 minutes someone dies from it. These facts are why we need you to help make a splash in the fight against ALS today.