Thank you for visiting our team page for the CEO Soak. Together we are challenging ALS and making a difference in the lives of those impacted by this devastating disease.
I have been the President of Henderson Construction Fabrics for 30 years, I am now stepping aside to let my brother-in-law take the reigns. I was diagnosed with ALS in Novemer of 2021. My symptoms began in January of that year in the Dominican Republic when I was laying block on a project and kept getting cramps in my left hand. I figured "I'm getting old", but the weakness progressed through the year.
Jenn and I couldn't believe our ears when the Neurologist said A-L-S. What did she say? A-L-S?? No way, not me. We were in utter shock and disbelief. It is a devastating diagnosis. It was so hard to believe at that time because all I had was some left hand weakness. Now over a year later, so much has changed. I have a feeding tube and one of the hardest things is not being able to eat. It has been several months since I've had a cheeseburger or pizza. I'd give anything to eat a slice of pizza! But, I'm praising God for my leg strength right now, because I'm still walking. I do have a motorized power chair because it's inevitable that I will lose my ability to walk, unless, God performs a miracle. And we pray daily for a miracle. ALS has taken away my ability to talk, to eat, to bathe myself, and even button my own clothes.
The Western PA chapter has been a tremendous resource for us. They are a GOD SEND in this tumultuous time. This is a disease that can progress fast and you really don't know what to expect from one month to the next.
Jenn and I are so blessed to have a wonderful support system around us. I miss the good old days of shooting oil and working along side so many great people at so many great companies. Thank-you for your prayers and your support for this cause. Every day we are CLOSER TO THE CURE. God Bless all of you and thank-you for the relationships throughout the years.