Thank you for helping me raise crucial funds to defeat ALS! The ALS Association’s goal is to make ALS livable for everyone, everywhere, until it is cured.

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow, and breathe. There is currently no cure.

That is why I started this fundraiser. Your support will allow The ALS Association to continue leading the fight against ALS in research, advocacy, and care services nationwide. 

Will you donate today to help defeat ALS?

For my birthday I have decided to do an ALS Fundraiser in honor of my husband Ronald Faye Sr. affectionately known as Chubs.

He was diagnosed with ALS in December of 2022 but had shown symptoms two years prior.  After a lot of blood work, MRIs, CAT scans, spinal tap and finally an EMG did we get the diagnosis.  He has kept his wit and a positive attitude thru this for the most part.  He became bedridden in September of last year.  We took money out of our retirement savings to get him the best bed possible for ALS .  The Hillrom Progressa bed which weighs 850 pounds and presented quite the challenge moving it into the house.  Thank you Bert Hill Movers.  

At the suggestion of his pulmonologist, on March 1st, he went into the hospital for a tracheostomy and a PEG tube.  These were supposed to be preliminary for further down the road when he needed it.  It was anything but.  He was eating, swallowing and breathing fine before this and now wishes he hadn't done it.  He would still have more quality time at home with his family.  He has not been home since.  Due to medical negligence, the trach and feeding tube were used almost immediately.  He was sent to Vibra Hospital in Rochdale, Massachusetts for rehab to adapt to the trach and feeding tube before returning home.  Now he is also on a ventilator to help him breathe at night.  He wants to come home.  We want him home.  But unfortunately as his sole caregiver I can't handle all of this.  He is now considered an ICU patient with the ventilator involved.  

Since at Vibra Hospital, he has been brought to the Emergency Room at Umass Memorial Hospital in Worcester twice.  Once for being unresponsive,pneumonia and sepsis three days after arriving there.  Second time just a few days ago for low blood pressure and sepsis again.  Also CDIF for the second time.  It is taking its toll emotionally and physically on him.  We, as a family, are struggling along with him.

This is an UNFORGIVING DISEASE.  PLEASE CONSIDER DONATING TODAY!!!  LET'S PUT AN END TO ALS.  

THANK YOU IN ADVANCE,

KATHY FAYE