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Welcome to Bruce Friedricks' ALS fundraising page

Donate Now

Dear friend,


Allow me to bid you a warm welcome to my ALS fundraising page for the 2022 Napa Valley Ride to Defeat ALS and Walk. This is the 18th anniversary of this signature event nationwide for raising funds and awareness to battle Amyotrophic Lateral Sclerosis, a devastating, progressive neurodegenerative disease. This is my 9th year participating in the ride, and my 3rd year as its co-chair. I continue to be extremely passionate in my commitment to create a world wthout ALS.

 

Please contribute today by clicking on the 'DONATE NOW' button on the top right hand side of this page. If you prefer to mail in a check, click on the link at the bottom for instructions. Thanks so much for whatever amount you can give.

 

Through the community’s outpouring of support for Golden West Chapter ALSA Team Challenge events, here are just a few examples of how recent significant progress has been made in the fight against ALS:

  

• In 2021 Amylyx Pharmaceuticals successfully began phase 3 clinical trials on a promising new therapeutic. AMX0035 showed impressive results in terms of slowing disease progression as well as establishing that the treatment is safe. After six months of treatment, it demonstrated a significant benefit compared to placebo, delaying the fast-acting neurodegenerative disease by supporting the inner workings of the brain’s neurons. 

 

 

• In 2021, Ionis Pharmaceuticals announced a pivotal patient trial of antisense therapy (ASO) following aggressive joint research efforts with The ALS Association and Project ALS.  Their Phase 3 clinical trial of ION363 (aka jacifusen), targets patients with a mutation in the fused in sarcoma (FUS) gene, a rare and aggressive form of ALS.


• In 2021, Biogen shared topline results from the tofersen VALOR Phase 3 study focused on people carrying the SOD1-gene mutation. The results from the VALOR study are encouraging as they show signs of slowing disease progression in people with SOD1-ALS relating to important aspects of their daily lives.

• In 2017, the FDA approved Radicava™ (Edaravone), the first new treatment specifically for ALS in 22 years. In clinical trials, some ALS patients receiving Radicava showed significantly less decline in physical function versus those receiving placebo. Click here for more details about this promising new drug: http://web.alsa.org/site/PageNavigator/alsa_radicava_faq.html. The only other approved treatment specifically for ALS, riluzole, was approved in 1995. This is a huge step forward for people with ALS.

 

• Scientists have identified a previously unknown function of a protein called TDP-43. The study’s findings suggest that, when TDP-43 is clumped together (seen in most people with ALS), it causes cells to function abnormally. Not only did these researchers identify how this appears to negatively impact cells, but also found a way to produce healthy ones by replacing it with another genetically-modified protein.


To learn more about the impact of ALS research during the past year, go to www.napavalleyride.com; click on 'About Us' on the main menu and then click on 'where the money goes.'

 

There is much more work to do to find better treatments and ultimately a cure while improving the quality of care for those suffering from this progressive neurodegenerative disorder. Thanks again for your support as we strive to achieve the pre-pandemic fundraising level for the Napa Ride of $1 million or more.

 


Most sincerely,


 

 

Bruce


Bruce Friedricks
Co-Chair, Napa Valley Ride to Defeat ALS & Walk

Golden West Chapter

The ALS Association

Oakland, California

 

 

Mobile: (510) 612 0420

bfriedricks@gmail.com

 

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Prefer to make a donation by check? Click here for a printable donation form!

Donate Now
Team Cohen
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Mr. Bruce A. Friedricks
of Goal
$22,107 Raised
$19,600.00
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Fundraising Honor Roll
Candy Cane Lane
$1,400
Lang Antiquers
$1,000
Geoff Barnet
$1,000
Katherine & Jesse Bass
$750
Bruce Friedricks
$674
Anonymous
$530
Match for Jennifer Mellor
$530
Dan and Alicia
$500
Mr. Stephen Jay Clarke
$500
JOHN C BUCK JR
$500
Anonymous
$500
Facebook Fundraiser
$500
Anonymous
$500
Mr. Bruce A. Friedricks
$500
John & Patti Grcina
$300
Julian Weingart
$300
Jay & Dana Hagan
$300
Christine de Baubigny
$300
Smart & Final Charitable Foundation
$250
ANDREW & SONJA WEISS
$250
Sheri & Doug Mowbray
$250
Sue Morris
$250
Dana and Jeff Swisher
Jill
$250
Maggie Ortelle
$250
Gale Berkowitz
$250
Nina Greeley
$250
Melissa Gray
$250
Eric Zimmerman & Laurie Friedman
$250
Philippe Depallens
$250
Edward Zimmerman
$250
Stuart Gove
$250
Sue and Michael Schwartz
$250
Eric Schwartz
$250
Lori & Hal Wine
$250
Adisa and John
$250
Philip Robb
$250
Facebook Fundraiser
$200
Monica Oldmen and Marc Sherman
$200
Min Yoon
$200
Facebook Fundraiser
$200
Facebook Fundraiser
$200
stephen clarke
$200
Facebook Fundraiser
$150
John A Gerson
$150
Laurie Dubin
$118
Howard D. Pariser
$100
Judy Schwer
$100
Dave and Sally
$100
Facebook Fundraiser
$100
Liz Brussesau
$100
Michael Hooper
$100
Gina Clark
Da Greens
$100
Raye Leith
$100
Facebook Fundraiser
$100
Mister Forrest
$100
Facebook Fundraiser
$100
The Nabipour's
$100
Facebook Fundraiser
$100
Peter Mozley
$100
robert aubel
Facebook Fundraiser
$100
Tippett Family
$100
Anonymous
$100
Steve and Leslie
$100
Anonymous
$100
Facebook Fundraiser
$100
Evan Pariser
$100
Laura and Mark Anderson
$100
Shelley & Ken Goldstein
$100
Anonymous
LAWRENCE SCOTT WEISS
$100
John Girton
$100
Facebook Fundraiser
$100
sonny chayra
$100
Pete Turner
$100
Anonymous
$100
Larry Chu & Tasmin Pesso
$100
Linda and Rob Halper
Anonymous
$100
Facebook Fundraiser
$85
Facebook Fundraiser
$80
Facebook Fundraiser
$80
Facebook Fundraiser
$75
John Becker
$75
Bruce Friedricks
The Dollingers
$54
Jennifer Welsh
$50
Facebook Fundraiser
$50
Monica Bonny
$50
Bogardus Family
Facebook Fundraiser
$50
Anonymous
$50
Anonymous
$50
Steve and Julie
$50
Karen and Dan Dunn
$50
robert stern
Facebook Fundraiser
$50
Gail Janin
Marie And Rich Narlock
$50
Amy Larson
$50
Dan Matso
Facebook Fundraiser
$40
Joanne and Fred Greene
Facebook Fundraiser
$36
Facebook Fundraiser
$35
Facebook Fundraiser
$35
Julie Chrisman
$30
Jeff Schwartz
$25
Facebook Fundraiser
$25
Danny Lee
$25
Rich Gordon
$25
Gloria Schneller Vicks
$25
Match by Danny Lee
$25
Facebook Fundraiser
$20
Dagmara Bobieni
$20

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The ALS Association
Golden West Chapter
 |  PO Box 7082
 |  Woodland Hills, CA 91365
 |  (510) 318-9234
 |  ride@ridetodefeatals.org