I was diagnosed with ALS more than six years ago, and although it has been a slower than average progression, it’s beginning to catch up to me. Some of you might not know the challenges and frustrations that ALS poses. Many of you already know these struggles intimately, but I feel compelled to expand on what ALS has taken away from me and also what it has brought to my life.
ALS has taken away my ability to speak clearly. Luckily however, I have access to great technology that allows me to communicate. And willing (and patient) listeners. While my voice is quite feeble, thankfully my laugh reflex remains robust!
ALS has weakened my legs and made it impossible to walk without support, but I’m still planning to climb into the saddle of my treasured recumbent e-bike and ride the road with many of you in Napa this year!
ALS has given me an appreciation for each and every day. Especially those days when I gather with my family and friends. Shout out to Team (s)Miles!
ALS has given me all of you; a community of people dedicated to supporting those living with this disease and committed to funding a future without it.
There is so much more that ALS does to all of us. I hope you’ll take this moment to reflect on this and send a message (or forward this one) to your loved ones. Recruit someone this week for Team Week, and please share your story with us.
There are a lot of fun prizes to win, thanks to Mike’s Bikes, but we know that’s not the real reason you’ll do it. You will do this because you’re a caring person. You will do this because you are a part of something bigger.
Thank you, and please remember: Together, we will defeat ALS.
If you have a few minutes to spare, please watch this video made by my friend Lauren about my journey:
https://vimeo.com/433603445
Thanks so much and go team!!
Miles
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