On Saturday, September 26, 2020, I along with family and friends will be participating for the 5th time in the Napa Valley Ride/Walk to Defeat ALS. Although this year we will all participate virtually, it is still an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.
In July 2016, my husband, Steve was given not only the devastating diagnosis of ALS (commonly known as Lou Gehrig's Disease) but also that it was the familial genetic form of the disease. His grandmother, his great aunt and great uncle, and his father all had the C-9 form of ALS and our children have a 50/50 chance of inheriting the defective gene. Sadly, Steve passed away on February 9, 2019 just shy of his 63rd birthday. He faced his illness with dignity and managed to keep his humor, his smile, and the twinkle in his eye despite the horrific nature of this disease. He is greatly missed!
This year, I will be riding locally on my own with my memories of Steve and my gratitude to the ALS Association keeping me company on my ride. The ALS Association provides care services in the community, funds global cutting edge research, and supports important public policy initiatives. They offer help and hope to those living and struggling with this tragic disease and I will be forever grateful for the unrelenting care and support they offered Steve and our family!
I am asking and would really appreciate your help. It would mean a lot to me, our family, and the ALS community if you would support our cause by making a donation (large or small)
The ALS Association has made it easy to donate or join me. Just click the red buttons to the right. Please call me if you have any questions.
Ride for those who can't. Ride to Defeat ALS. Thank you in advance for your support!
With gratitude,
Shauna Avon
Prefer to make a donation by check? Click here for a printable donation form!
