It's that time of year again and while we’re slow to get our message out again this year, we’re ready to raise money and ride to support Miles and Dubie, and all those affected by ALS! After two years of having a virtual event, it looks like it is in person!
This is the 18th Annual Napa Valley Ride/Walk to Defeat ALS. It will take place on Saturday, September 24, 2022, and there is no other place to be than with Team (s)Miles!
This will be my and Monika's 8th ALS ride to raise funds for the ALS Association, which provides care services, supports important public policy initiatives, and funds global, cutting-edge research. We are asking for any support you can give so that we can help raise funds toward a goal of creating a world without ALS.
As always, we are riding with Team (s)Miles to support our dear friend Miles who was diagnosed with ALS 8+ years ago. Miles' progression was slow, but unfortunately ALS has slowed him even more this year. He is no longer walking and cannot make it upstairs any longer. Miles’ verbal skills have continued to decline. He can still make himself understood if you’re patient, but he can always use his text to talk on his phone whenever needed.
Miles continues to live life to the fullest which is no surprise to those of us who know and love him -- and to know him is to love him! He has made sure that he can get around his house and yard with his wheelchair, and set up his workshop in his backyard, with lifts at each end to get him up or down with his wheelchair. It's quite impressive. And even when he had Covid, he was out in his shop as soon as possible. He always has to stay busy!
We know many have been touched by ALS in some way. Since Miles was diagnosed, it is amazing how many people we've met who know and love people with ALS and who have lost people from ALS. While we ride with Team (s)Miles, we ride to support all those struggling with ALS and their families.
Raising awareness of the urgency to find treatments and a cure is our goal. Incredibly, every 90 minutes someone is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. Presently, there is no known cause of the disease, and the average life expectancy of an ALS patient is two to five years from the time of diagnosis. Thanks to you, last year Team (s)Miles raised over $110,000. This year Team (s)Miles is leading the fundraising efforts and we want to keep them in the lead for this very important cause.
We realize that there are so many people and organizations that need our assistance - even more these days. A donation of any amount is appreciated, and we thank you in advance for any amount you're able to give, but we also understand these are hard times for so many people in many different ways.
Wishing you and yours all the best.
Ken, Monika and Zoë