Dear Community,
This year, we ride in Dad's memory. August 27, 2019 we said our goodbyes. ALS took him way too early. We have to break this cycle and find a cure.
Any dollar helps bring me over the finish line in supporting the Golden West Chapter of the ALS Association, the most active organization globally in the fight against amyotrophic lateral sclerosis (ALS), perhaps the most terrible disease I've ever witnessed first-hand.
Last year we raised nearly $20,000. Let's see what we can do this year!
My father Rusty was diagnosed with this disease in July of 2017. At the time, he was experiencing some weakness in his left hand, but otherwise living normally. Less than two years later, he lost all use of his arms and legs and could barely speak. Despite being a neurodegenerative disease, ALS largely leaves mental capabilities intact, so he fully comprehended the whole process.
While the ALS Association invests heavily in research, there is currently no cure for this disease.
Rusty is the best man I've ever known, and I aspire to be like him every day. Not only did he enter the challenge of this disease with grace and optimism, he used his skills from decades in politics to assure nine million dollars for patients, caregivers, and researchers of ALS. Despite his physical disabilities, he woke up every day with a smile, especially knowing he's helping others. You can read more about his story here:
http://webgw.alsa.org/site/PageServer?pagename=GW_9_2018_11_07_Spotlight_on_Rusty_Selix
This funding is so important, since ALS typically costs patients and their families $200,000 a year. If my father can raise $9M for this cause from a wheelchair, I can do my part with just a fraction of that from a bicycle.
Will you help me?
$548 investment - One day of care for a patient with ALS
$100 investment - $1 for every mile of the ride
$16 investment - $1 for every person diagnosed with ALS in the US every day
Please consider a donation, or better yet, ride or walk with me on TEAM RUSTY on September 24!
Much Love,
Shae
Prefer to make a donation by check? Click here for a printable donation form!
