My Story
I have ALS. To be honest with you, I'm pretty sure I'm still in denial!!! I always thought I would be there for my parents, imagined I would grow old with Greg, assumed I would be there for Shell and Julia, for their special days ahead, for our accidental Facetimes and silly group texts. My time is shorter now, for chats with my neighbors, crazy adventures with my friends, Yahtzee games, favorite hikes, dog walks, trips and big holiday meals with our family. Life is so precious. I am walking in the Jim Tracy 5K to Defeat ALS to DO SOMETHING, right now while I can. Funds are desperately needed to continue the search for a cure, for education, advocacy, care, support, medical equipment loans and more. I am really looking forward to April 24th. It's going to be a GREAT day! Please donate any amount at all!
What is ALS?
Amyotrophic Lateral Sclerosis is a neurodegenerative disorder. It causes weakness and wasting of all voluntary muscles. This includes the muscles we use to speak, to move, to swallow and even to breathe. ALS moves fast. On average ALS patients live for about 3 years from the onset of first symptoms. Unfortunately, there is no cure for ALS.
Why We Need Your Help
ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
1. The average life expectancy of an ALS patient is two to five years from the time of diagnosis.
2. Every 90 minutes someone in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this disease.
3. ALS can strike anyone. Presently there is no known cause of the disease. Someone you know or love may die from ALS unless a cure is found.
4. Caring for a loved one with ALS costs on average of $300,000 each year.
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