It's overwhelming to think about all the things this disease will steal from my mom. When I picture my mom, I think of her walking Abby, hiking, bodysurfing, dancing, or trying to play Wii Bowling. We've been calling her "Chatty Cathy" for years. She used to disappear for hours and we'd find out the entire time she was talking to a neighbor she ran into on street. One of the first things she said after she told our family about her diagnosis was that she wanted to join a fundraising walk. I think that is an amazing example of her character. She wanted to find a way that this horrible disease could bring us together to help others.
If you don't already know, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. There is no known cause or cure.
Caring for a loved one with ALS costs on average $300,000 each year. I want to encourage anyone who finds a way to give directly to people with ALS to do so even if it means you cannot donate to this particular fundraiser. Mutual aid is the future of giving
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