Why I Run...
My husband Hal Finney had his life cut short by ALS, at the age of 58. I promised Hal that after he passed I would continue to pursue ways to help find cures for this devastating disease. The Running Bitcoin Challenge was created in his honor. I run to support those affected by ALS and to spread awareness of the urgency to find treatments and cures for this vicious affliction.
What is ALS?
Often referred to as Lou Gehrig's disease, amyotrophic lateral sclerosis (ALS) is a relentless, devastating, and fatal neuromuscular disease that progressively robs the body of its ability to walk, speak, swallow and breathe. In severe cases, a person with ALS can also lose eye movement, and become completely paralyzed, reaching a "locked-in" state, with no ablilty to communicate. At the present there is no cure or even a way to stop its unremitting progression.
Why We Need Your Help
ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
1. The average life expectancy of an ALS patient is two to five years from the time of diagnosis.
2. Every 90 minutes someone is diagnosed with ALS, and every 90 minutes another person will lose their battle against this disease.
3. ALS can strike anyone. Presently there is no known cause of the disease. Someone you know or love may die from ALS unless a cure is found.
4. Caring for a loved one with ALS costs on average of $200,000 each year.