Last year, Kayleigh's dad, Scott Massengill, was diagnosed with amyotrophic lateral sclerosis (ALS), a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. Shortly thereafter, family and friends came together and formed "Team Scott" to raise awareness about the disease and begin fundraising efforts for the ALS Association. Nicki Callegari has joined Team Scott and she and Kayleigh are running the Fool’s Day Half Marathon on April 3 as part of the Team Challenge ALS. Team Challenge ALS is an exciting opportunity for us to run some miles (13.1!) in advocating for and empowering the ALS community.
While progress has been made in understanding ALS, there is no cure and the average life expectancy of a person with ALS is approximately 2 to 5 years from the time of diagnosis. Today, around 20,000 people in the US are living with ALS and 5,000 more people are being diagnosed each year. It costs an average of $250,000 a year to provide the care people living with ALS need.
Challenging this horrible, fatal disease is very important to us. There is no cure because the fight against ALS is underfunded. Would you please consider making a donation and bringing us closer to a cure?
Thank you for your support.
With love and appreciation,