Let's goooooo! The super hero dash is on May 20 for 2023! It's late enough that the weather better be nice, and it's not on fishing opener this year! I'm not going to put a big update on my Als progression in this forum, but you can always go to CaringBridge for the latest updates.
Below is the impact Team HOPE#4G has made over the years!!!
2018 Dash - $21,638 - 104 people
2019 Dash - $38,912.50 - 211 people
2020 Dash - $16,370 - 60 people
2021 Walk - $39,137 - 120 people
2022 Dash - $24,810 - 103 people
Raising money for the ALS Association is important to me because of all the support and equipment they have provided me during my personal journey. Some of the items include my mobility scooter, a transfer wheelchair, A shower chair, Alexa device, fire cube, Bedrails, kitchen gadgets, my iPad pointer which I affectionately call my pistol, and likely a lot of things I don't even remember. They couldn't be a more supportive an important resource for everyone battling ALS.
Ultimately the super hero dash is one of my favorite events because I get to see so many people who come out to support the cause, and me, of course. This helps more than you know, because cariryng on the daily, weekly, monthly battle is hard. So sign up I hope to see you on Saturday, May 20!
WHY I NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. To put that into perspective, think of your last seven hour Netflix binge, during that time approximately 10 people were either diagnosed with ALS or lost their battle. ALS occurs throughout the world with no regard for age, gender, race, ethnicity, or socioeconomic boundaries.
That's why I'm asking you to participate alongside me in the fall Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments, better yet a cure
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. Although the more I learn the more I realize every single ALS patient is on an individual journey with no real timeline. Look at me I'm still walking, or maybe shuffling would be a better word to describe it, 4+ years post diagnosis. I will be here years to come haranguing all of you into participating in this walk year after year! You're all so lucky!
Due to the rapid progression of ALS, the needs of someone living with the disease evolve rapidly over a short period of time. Often times insurance does not cover durable medical equipment, so The ALS Association utilizes a loan pool that allows people to access equipment at no charge. I can't even tell you how many items the ALS Association has provided me that make a huge difference in my quality of life! Caregivers often need a break, so The ALS Association pays for skilled home care workers to give those caregivers time. The ALS Association also provides augmentative communication devices that are critical when someone's ability to speak has been compromised.
All of these support tools help individuals and families impacted by ALS live the fullest life possible, which is why we're asking you to support our fundraising efforts or join our team.