As many of you know, we lost my mom, Susan, to ALS in 2021. We watched helplessly as ALS took her voice, took her ablility to move and ultimately took her life. The ALS Association was such a blessing during this time offering resources when we didn't know what to do next. Without your donations this support wouldn't be possible. On May 17th, I will be participating in the SuperHero 5K/10K Dash, an event designed to raise funds in support of those living with ALS. I am reaching out to you because I need your help to reach my personal fundraising goal. Together, we can support those living with ALS while spreading awareness of the urgency to find treatments that will lead to a cure. Our goal is that no one else has to suffer the same pain as our mom.
This is a great time to get your family, friends, colleagues, and neighbors involved and become SuperHeroes! Please consider the difference that you might be able to make in the lives of people affected by this disease. Join me at Harriet Island on May 17th or make a donation!
Also referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly takes away the body's ability to walk, speak, swallow and breathe. There is currently no cure for the disease with life expectancy averaging 2 to 5 years from the time of diagnosis.
Due to the rapid progression of ALS, the needs of someone living with the disease evolve rapidly over a short period of time. Often times insurance does not cover durable medical equipment, so The ALS Association utilizes a loan pool that allows people to access equipment at no charge. Caregivers often need a break, so The ALS Association pays for skilled home care workers to give those caregivers time. The ALS Association also provides augmentative communication devices that are critical when someone's ability to speak has been compromised.
All of these supports help individuals and families impacted by ALS live the fullest life possible, which is why I'm asking you to support my fundraising efforts. Help make a difference and donate today by clicking on the Donate key. Your gift will make you a hero in the lives of others.
My most sincere thanks,
Marie
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