Hi Bike Riders and friends-
I hope this finds each of you well in spite of COVID 19 and what it has done to our world. I am hopeful that we are seeing the light at the end of the tunnel and life will return to some semblance of normal sooner than later.
But ALS does not stop for anyone, even in the face of a global pandemic. I continue to spend a significant amount of my time supporting ALS patients and their families via my activities with our local ALS Association of Oregon and SW Washington chapter as well as the national ALS Association. As I approach retirement, I have limited my clinical practice to ALS patients only. Some visits are virtual, but others are in person or in their homes. I serve on our local Board of Directors as well as the National Board of Trustees and serve on many national committees including the Research committee, Care Services committee and the subcommittee that evaluates ALS Clinical Treatment Centers of Excellence – like ours at Providence Portland Medical Center.
I am again participating in the Ride to Defeat ALS in person on July 17. Amazingly, we can return to an in person event this year- at Mt Angel as in the past. I plan to simply ride the 25 mile course, but there are other options for those in better shape than me.
The reason I am passionate about this event and raising money for ALS include the following:
- Fund a treatment and a cure for ALS.
- Provide hands-on support to people with ALS and their families during their journey with ALS.
- Raise awareness for a disease that is NOT rare and occurs every 90 minutes in the US.
- And of course, because it causes death mainly by effecting breathing muscles
If you’d like to join my team (#RideWithLou), you can simply click on this link:
Or you can call Emilee, a development coordinator with the chapter at (503) 334-0678 or email her at firstname.lastname@example.org