As many of you may know, Angie was diagnosed in February 2020 with Amyotrophic Lateral Sclerosis (ALS). About 5,000 people in the U.S. are diagnosed with ALS each year, and there is NO cure for this fatal disease. Most people live only 2 to 5 years after diagnosis.
With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease. ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities.
Angie and I feel lucky to be surrounded by love and the support of our kids, family, and friends. We are grateful to have good insurance and access to several ALS centers of excellence in the Bay Area. We are not fundraising for ourselves, but instead we hope to be a voice for the thousands of people affected by this terrible disease.
We are thankful that there are many research institutions and companies working on therapies to slow down and/or cure ALS. Thanks to NIH (government) and private funding, including the ALS Association (alsa.org), much has been done in the past 10 years to advance understanding of the mechanisms that cause ALS. However, most of the drugs in development are still in the research or clinical trial stages, and not yet moving to FDA approval. This means most of us with ALS today will die before a drug is approved.
We need funding to accelerate research. We need faster clinical trials and FDA approvals for ALS and all terminal diagnoses. The ALS Association also provides invaluable advocacy and support for families and individuals affected by this disease.
Your gifts will make this possible. Please click the donation button and give as you can.
Thank you for helping us build a Community of Hope!
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