Established by Mary Ann Cooper
North Carolina Chapter

    Nelson began living with ALS in June 2016 and and went to live ALS-Free in Heaven May 18, 2017. Our family has been staying "CoopStrong" thanks to the prayers, support, and love from people like you! We want to honor the legacy of Coop and continue the fight against ALS in his memory. 

    We need to let people with ALS know they are not alone.  ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities. 

    With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.

    However, we can work together to create a Community of Hope that restores dreams and builds courage.  Our community gives strength and hope to our loved ones, neighbors, and friends facing the fear and uncertainty of ALS.

    Your gifts will make this possible.  Please click the donation button to the right and give generously.

    Thank you for helping us build a Community of Hope!

    Prefer to make a donation by check? Print and submit this form with your gift.

    My Blog


    Coops' letter to friends after he was diagnosed
    Dear Friends,
    It has rarely been my preference to share details of my life journey on Facebook, but this week I have realized the power of social networking and how connected and influential people are to each other. With that, I do have some news to share.
    Some of you have noticed Facebook activity about our family this week. In the past 3 months I have been dealing with some health issues. I began to aggressively discuss it with my doctor and eventually a neurologist. After a lot of tests the neurologist told us this past Monday that my probable diagnosis is rapidly progressing ALS (Lou Gehrig's disease). I will have an appointment for a second opinion by a neuromuscular specialist at Duke soon. The neurologist suggested that if there is anything we want to do - do it now, while I can still walk and talk. He encouraged us to seek clinical trials and to get into "fight mode".
    I have spent much of this week figuring out what fight mode is, and we received a great reminder Wednesday night when 100+ people showed up for a prayer service for healing at our church, Oakmont Baptist in Greenville, NC.
    Mary Ann (my wife), and Jefferson and Bailey (our children) are great blessings and have been so wonderful. We are obviously sad and overwhelmed at times, but know we have the love and support of family and friends. Our faith is strong, and we know we are not alone. We are incredibly blessed with resources and family. It saddens me to think about people that might face this alone and with very little.
    We welcome your prayers, texts, messages, and e-mails. My speech is already changing so I try to manage that with priority. I hope I might see many of you around, and if I do I hope we share some time and laughs.
    Thank you for your friendship and reading this. Know that your life matters to many, so do good work, laugh every day, and press on!

    by Mary Ann Cooper on Tue, Apr 10, 2018 @ 8:32 PM

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