Thank you, from the bottom of my heart, for considering a contribution to my Walk to Defeat ALS Team.
I walk for my sister-in-law, Susan (Susie) Panciera, who is just about the kindest human you will ever be lucky enough to encounter, and who was diagnosed with bulbar-onset ALS in 2022.
The Walk to Defeat ALS raises funds to support Susan and all others impacted by ALS. These funds also help to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.