Help me raise money to find a cure for ALS!
Welcome to My Personal Page
|Event:||Western Maryland Walk|
|Date:||Saturday, October 7, 2023|
The Walk is returning to Western Maryland again this year - Yeahhhh!!! We had a good showing in Baltimore but Frederick feels more like home for us.
My twin sister, Mary lost her battle with ALS in December, 2013 after living with the disease for 4 years. She was remarkable in her outlook on life and set the bar incredibly high for being an example on how to live graciously and faith-filled. Unfortunately we found that we have the familial form of the disease and our sister, Patty also suffered with ALS and passed away in April ,2020 from ALS and complications that were implicated by Covid-19 and our inability to get her timely care..
I was diagnosed in March, 2021 and am fighting the slowly progressive weakness that is indicative of this disease. I recently entered a promising clinical trial at Georgetown and we are hoping and praying for its success. Your prayers would be appreciated as well.
As you can imagine, it is with renewed hope that we are praying that a cure will be found for this degenerative disease so that other people and their families will not have the same struggles that we did. If not for Mary and Patty, then in their honor, we hope to assist with this cause. We welcome anyone to join us "virtually" on the Walk and if not, to assist with our fundraising to further the research into a cure for this disease. It is amazing how far reaching its impact is on families and people living with ALS. Our family has forever been changed by this disease.
Please consider walking with our team, Mary's Marchers , walking virtually or sponsoring me if you cannot walk yourself. With your help, we will be able to make a difference in the lives of people affected by this disease. I encourage you to get your friends, family, neighbors and coworkers involved!
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neurodegenerative disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
Thanks so much- truly!
Teri and Jeanette
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joined the movement!
James and Virginia Knowles
Mr. John Knowles
Sue and Harold
Tom & Kathy Copmann