Help me raise money to find a cure for ALS!
Join the Movement - Lorne's Legacy
|Date:||Saturday, October 7, 2023|
MY CONNECTION WITH ALS
The ALS Association is an organization that has been near and dear to my heart since I could remember. I have been involved in committees for the ALS Association this past year, and it has helped me heal from my own personal connections with ALS. I have had the opportunity to be a part of this incredible community and connect with patients, their families, sponsors, and other advocates who are passionate about making ALS a livable disease.
In 2003, my dad lost his inspiring, tenacious, and courageous battle to this devastating and underfunded disease after nearly a 12 year long fight.
ALS (also known as Lou Gehrig's Disease) is an insanely expensive disease. Not only is it physically, mentally, and emotionally taxing, but it is a huge financial burden for patients and their families. There are so many incredible and accessible resources that weren't around two decades ago, especially in regards to technology, to help make living life with ALS less burdensome. However, those things come at a cost.
I am truly humbled to advocate, fundraise, and share my families story with ALS. Please consider joining my team, sponsoring me, and/or donating! Even if you are not able to donate, come join my tribe on the Walk to Defeat ALS! The more, the merrier....at Marymoor Park!
Additionally, please do not hesitate to reach out if you have any questions regarding the walk, the disease, or my dad's story. Feel free to reference below for more a little more information on ALS.
Love and light,
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
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joined the movement!