Greg Heinz

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$1,000.00

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Welcome to My Fundraising Page

Event:	Seattle Walk
Date:	Saturday, October 7, 2023
Team:	Everett PLS with a Purpose, Patience, Love and Support

Thank you for helping us reach our fundraising goal! Our team is committed to raising money to support people in our community with PLS/ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause. Some of you may know this but for those who don’t, my wife Karen White’s first husband DIED OF ALS!

So you see how meaningful this is to both of us.

WHY WE NEED YOUR HELP

I have Primary Lateral Sclerosis (PLS), a rare neuro-muscular condition that affects voluntary muscles via lesions on the brain. PLS is a progressive and degenerative disorder that typically affects functions that govern mobility, fine and gross motor skills, coordination, speaking, swallowing, and executive functions in the brain. Like ALS, there is no known cure and no known cause. Unlike ALS, PLS is not fatal although is is life-altering. People with PLS can live as long as 20 years or more depending on care and age at onset. However, PLS, not being fatal, means that the sufferer and the caregiver sometimes face a long life with increasing costs as the condition progresses.

Karen’s first husband, Lee, had Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease, a fatal, neuro-muscular condition that progressively robs the body of it’s ability to speak, swallow, and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis, although Lee lived for 14 years after diagnosis.

ALS is not rare. Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

This crippling disease can strike anyone. It costs an average of $200,000 a year or more to provide the care ALS patients need. We hope that research on ALS will have a spillover effect on treatment for people with PLS; help make a difference and donate or join a walk today.

Greg Heinz

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