Hi,

Yes, it is that time of year when I raise funds for the charity that I believe will help most in finding a treatment for Primary Lateral Sclerosis. This is a long letter but please read all the way to the bottom.

 On October 7, 2023, I am joining the movement to cure ALS/PLS with hundreds of walkers for The ALS Association’s Walk to Defeat ALS Seattle to Defeat ALS.

My PLS is progressing. While I mentally continue to feel about the same, my physical capabilities have declined more this year than in past years. Tested for motor functions, I regularly see my ALS Clinic Team consisting of my Neurologist, Physical Therapist, Speech Language Pathologist, Occupational Therapist, and other specialists. I have weekly home sessions with a Physical Therapist. Plus, I am helped by a team who supports people with motor neuron disease, like vendors for wheelchairs and of course the ALS representative, and my support groups.

Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis. PLS, a variant of ALS, is different in that you can live twenty or more years with it.

Estimates put the number of persons in the U.S. with PLS between 800 and 2000. So, it is a very rare disease. With PLS, it can take years to determine which neuron disorder one has. Symptoms took me to a doctor twelve years ago. PLS is similar to ALS, which affects both upper and lower motor neurons. With PLS, my upper neurons die and signals to move my muscles are slow and eventually will not work.

Last year, thanks to family and friends like you, our small team raised more funds for research than any other team in our chapter. It is our hope that we can make a difference in finding a cure. That would be the best gift I could hope for. Please make a donation today to help us in our quest for:

·         Cures for upper motor neuron disorders.

·         Medical equipment loans and referral services

·         Support groups

·         Education

·         Advocacy efforts for access to care

Any amount would be appreciated by all of us with ALS or PLS.

Please support this important cause with your tax-deductible donations if you are able.

Thank you for your donations and prayers!