In June 2022 our mom, Lisa Hawthorne was diagnosed with ALS - a progressive and terminal disease, currently without a cure and life expectancy of 3-5 years. Our mom is 52 years old.
About a year before her diagnosis, she started experiencing “drop foot”. She went to countless doctors and specialists, had numerous MRIs, X-rays, a spinal draw and more. We were certain it was just a minor nerve issue that could be resolved with simple treatment or surgery, but boy were we wrong.
Mom’s leg has slowly continued to worsen over the past year (not much pain, just doesn’t function properly). She feels like she is walking through quicksand. It’s progressed into her right leg, making it more difficult to walk and into her left arm. Her neurologist deemed her a “slow progressor”, which we are so thankful for.
Our mom is very grateful and blessed for the support from her friends and family.
Sometimes times are dark, but she has her friends and family to lean on. We cry it out together, try to make those tears turn into giggles and move on to a happier place. Humor and positivity help so very much. She tries to focus on what she CAN do and what she DOES have rather than what she can’t do and doesn’t have. Her faith has been a constant in getting through the ups and downs. She has always said that things happen for a reason, we just don’t always know what that is.
Last year she and a few of her girlfriends (My gal pALS) participated in the ALS Walk. Mom would like to participate in the walk again! This year she wants to get more folks involved. We’re sticking to the name My gal pALS. So, if you’re a guy, you’re now one of the gals. 😊 We will be walking to raise awareness, support those living with ALS and continue funding for searching for a cure. All proceeds will go to the ALS Association and a T-shirt for the walk. If you’re interested in joining “My gal pALS” on October 7th at Marymoor Park, please sign up through the following link Walk to Defeat ALS Seattle | The ALS Association. If you’re not able to participate in the walk but wish to donate, you may do so on the ALS Association website above.
ALS is an earthshaking disease, for which there are no answers – only more questions. Our mom’s strength and positive outlook on life are remarkable. She has always been the one to keep our family strong – now it’s time we do the same for her. Thank you for taking the time to learn about my mom and our journey through ALS.
Thank you for your support!
Josie and Gavin
