Help me raise money to find a cure for ALS!
Welcome to My Fundraising Page
|Event:||Greater Los Angeles Walk|
|Date:||November 6, 2022|
They say you never know how strong you are, until being strong is your only option...
ALS is incredibly personal to me...
I became aware of ALS was when a loving father & husband to friends of mine, Ismael Mejia was diagnosed. It was heartbreaking to hear especially because they are such a loving family.
The difficult thing about ALS is that it goes undetected or misdiagnosed, for months or even years, in a lot of cases.
This was exactly what happened to us. My hero, my rock, my Pop, Sigifredo Morales, was diagnosed about two years after Ismael.
I will forever be grateful to Adela & Natalie Mejia, who were courageous enough to share Ismael's battle with ALS, so that people like myself could become aware of this often misdiagnosed and fatal disease. It was under unfortunate circumstances, but a blessing in disguise because we were able to go through this journey together. Thanks to their support along with the ALS Association we were able to help my Dad with his battle.
No one truly understands the emotional and physical strain ALS has on a person until they are in those shoes. I had to put myself in that mindset everyday, thinking how frustrating it must have been for my dad and Ismael to go from being able-bodied, hardworking men, to having to rely on people to do easy, day to day things for them.
Although new advances in medicine had recently become available, Ismael's condition was too advanced for it to take effect and he lost his battle in June of 2018 to ALS.
My Dad was able to take advantage of the medication until we ran into insurance issues. This was a constant battle for us either the medication was approved and his much needed dr.'s were not or the dr's were approved and the medication was not. Shortly after losing coverage for his medication, my dad's mobility began to decline. His illness began to progress once again more and more.
As heartbreaking as it was, I put a brave face on and made sure that my dad knew we were all in this together. This battle was not only a physical one, but an emotional one, FOR ALL OF US.
My dad may have lost his ability to walk or hold things with his hands, but he never lost his ability to hug, speak, sing or laugh. This was his biggest fear of all - he never wanted to lose the ability to tell us that he loved us.
Unfortunately, my Dad also lost his battle to ALS on the morning of October 7, 2019.
When he was diagnosed I made a promise to him to fight this with him every step of the way. I kept my word until his last breath. Although ALS took a piece of my heart that day, I will continue to fight the battle until a cure is found.
I pray that no other family has to endure the battle... I'm walking to change the statistics. To bring help and hope to those living with the disease, to ensure that no one ever hears the words "You Have ALS again".
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis is a progressive, fatal neuromuscular disease.
- Once ALS starts, it almost always progresses, eventually taking away the use of fine motor skills.
- The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
- Military veterans are approximately 2x's as likely to develop ALS.
- ALS can strike anyone; it occurs throughout the world with no ethnic or socioeconomic boundaries.
- 6,000 people are diagnosed with ALS each year and nearly 20,000 Americans are living with ALS today.
These are more than statistics to me, because they affect people I love. Please support me as I Walk to Defeat ALS.
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Koda & Metztli