In February 2020, we lost Nova, our shining star and the heart and soul of our family. She had been diagnosed in 2016 with ALS. The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. Nova had less than 4 years. ALS can strike anyone, and presently there is no known cause or cure.
That's why we're walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: "You Have ALS" again.
The past few years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. But those advances were not in time to help Nova.
We can't stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
