Help me raise money to find a cure for ALS!
Welcome to My Fundraising Page
|Date:||Saturday, April 29, 2023|
Thank you for helping me reach my Walk to Defeat ALS fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
Did you know that someone living with ALS need costly items just to be able to move around, breath and communicate. Here are just a few:
• Mobility Equipment, including manual wheelchairs ($1,300), mobility scooters ($1,200), and four-wheeled walkers ($250) are required at different stages of the disease progression.
• Communication Devices Assistive technology such as voice amplifiers ($250), tablets with speech applications ($600), and advanced eye-gaze mounts ($18,000)become necessary for people living with ALS to communicate effectively.
• Respite care programs offer relief for ALS caregivers to accomplish tasks like running errands and housework, or simply to rest. Three hours of professional respite costs $120.
• Assistive Equipment like shower chairs ($80), power lift chairs ($1,200), and hospital beds ($2,500) increase independence and improve quality of life.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
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Janice L Berndt