On February 24, 2019, my world was shattered when this horrific disease took my high school sweetheart, soulmate, and husband of what would have been forty-two years on July 2, 2019 away from me, his children, grandchildren, mom, siblings, sisters & brothers in law, as well as  many friends, family, and business clients. He was diagnosed of ALS and Frontotemporal Dementia on January 20. 2017. He was a workaholic who was told he could not go back to work effective immediately. The next two years consisted of doctor appointments, ALS Clinic, and spending time with family and friends. We took road trips and tried to relax and enjoy life as much as possible. He always had a smile on his face and finally learned to enjoy "not working".  

We need to find a cure for this monster of a disease! For this reason, I created this team that year and participated in the ALS Walk in Burlington, on September 21, 2019.  In 2020, due to the restrictions caused by COVID-19, we are unable to gather as a whole group of teams. We could, however, do the walk at our own destination with just our team and do check in via Facebook Live. It wasn't the same, but at least we could still walk as a team.  In 2021, we were able to walk with all of the Vermont teams.  We walked at Leddy Park anytime between certain hours. Last year, we were back to normal at Oakledge Park and it was wonderful to have everyone together with an opening ceremony, music and snacks. This year we will be back at Oakledge Park again. It's a beautiful walk.  It only lasts a few hours but the feeling of helping to fight this horrible disease will stay with you forever. I would love for you to join our team and walk with us. If you are unable to be there, please help me reach and/or surpass my goal! Every dollar brings us one step closer to a cure.  

The past few years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. There is another treatment program that has just been approved as well. WE CAN'T STOP NOW! We are still losing community members to this horrific disease. PLEASE HELP!!

Please consider walking with me and collecting donations or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease. 

Why We Need Your Help

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages two to five years from the time of diagnosis.

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

ALS can strike anyone. Presently there is no known cause of the disease, though support is bringing researchers closer to an answer. In the meantime it costs an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to bring help and hope today!

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