On January 4, 2022, I lost my Father, Roger, to a 2-year battle with ALS. I miss him every single day especially his kindness, laughter, joy for cooking and fishing, and love towards his family. So this November, it is an honor to walk in his memory with Team ROGER THAT- a nod to his 30-year career with Boeing and the Space Shuttle Program.

Please help me reach my Walk to Defeat ALS fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.

That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again. 

The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.

But, we can’t stop now. The key to a cure begins with you. 

Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.

Thank you so much!

Sincerely,

Kyla Justiniani