"Why NOT me,?" my brother and friend, Tom Cioffi, asked when he disclosed his ALS diagnosis to me. "I'm not afraid, Jan. I know what's coming. I have faith." With that, he savored every moment of his life until his passing on January 15, 2020. The only crack in his spirit through those 4 years was the pain of leaving his six young grandchildren.
Even as his illness progressed, Tom lived joyfully and with purpose. He brought friends and family together from all over the country. At this time of year, we met in Philadelphia or Allentown, PA to fundraise and Walk to Defeat ALS. Team Tom took 1st and 2nd place in dollars and walker count every year with Tom as our captain. He was impassioned by the fight to DEFEAT ALS and to give back to the ALS Association that helped him so much.
Thank you for helping me reach my Walk to Defeat ALS fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.