Thank you for helping me reach my Walk to Defeat ALS fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
My husband Damion passed away from ALS March 14, 2022 after suffering from the terrible disease for almost five years. I saw first hand the courage he showed in the face of continuous loss and struggle. I want to raise awareness and find a cure, or at least a better treatment in the mean time, so others don’t have to suffer the terror of ALS and to honor Damion’s heroic fight.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To honor Damion and all those with ALS.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.