It started in 2015 with a limp that we would later learn was called "drop foot." In August 2016, after a year of doctor appointments and tests resulting in "everything looks fine," when she clearly wasn't fine, she was finally diagnosed with ALS & FTD. Two years after her diagnosis, at the age of 59, my Mom passed away after slowly losing her ability to walk, talk, eat and breathe.
Amyotrophic lateral sclerosis (ALS) ("Lou Gehrig's disease") is a progressive, fatal neuromuscular disease with an average life expectancy of 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
I’m walking to honor my Mom and to raise money to bring help and hope to those living with the disease. The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
Please consider donating and/or walking with me on June 22nd. With your help, we will be able to make a difference in the lives of people affected by this disease.