FROM JOHN
It has now been five years since my symptoms first appeared. Unfortunately, the last year has seen a faster progression of my disease. I can no longer stand or walk and I am confined to a power wheelchair. I spend most of the day breathing with the assistance of my BiPap machine. I take my meals through a tube into my stomach. Luckily, I continued to be blessed with the wonderful care of my wife Jacqueline. My daughters, Nicole and Jessica, also help out when they are home from college.
The past year also included many joys. Nicole comes home on weekends from medical school. Jessica took the spring semester off to stay with us. They light up the house when they are here. We went on a cruise in April and I spent my days playing Scrabble and enjoying the trip with my family. I cheered on our hometown teams, attending Astros and Texans games. Although most of my days are spent at home, I enjoy spending time with friends and family who visit us.
I often imagine the life I would live if I were miraculously cured. I would be a far more humble person. I would take joy in the simplest of things and be thankful every day for the glory of existence. I would be very aware of people suffering through similar diseases as mine. I believe that I would dedicate significant time helping those people live with their disease in the best way possible. Meaningful treatment for ALS is still years in the future. For people with ALS today, gaining the knowledge and the equipment to make life bearable is of utmost importance. The ALS Association is not only dedicated to finding a cure, but they assist the ALS community with living their lives to the fullest.
Please join The Wright Team to fight ALS by walking with us on October 28th, or choose a team member from our list and donate to the cause. The ALS Association is committed to raising money to support people in our community with ALS and spreading awareness of the urgency to find treatments and a cure. With your help, The Wright Team can win the fight!
Thank you,
John Wright
ABOUT ALS
Amyotrophic lateral sclerosis (ALS) is a progressive neuromuscular disease that slowly impacts the ability to walk, speak, swallow, and breathe. ALS can strike anyone, and presently there is no known cause or cure.
That’s why the Wrights are participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments and a cure. Will you join us?
