Thank you for your support with a cause that is very dear to my heart. This is the 6th year that our team, Casey At the Bat, has participated in the ALS Buffalo walk/fundraiser.
My Dad, James "Seamus" F. Casey, Jr., was diagnosed with ALS in November 2016. Anyone who knows Dad knows he's a story teller, which is what makes this disease even more painful. In 2018 Casey lost the ability to use his hands/arms, and with that the use of his phone to communicate with (he used to use Bitmojis when texting became strenuous). It is getting harder to understand him verbally, but he's hanging in there.
Watching this debilitating disease challenge his basic, every day functioning has been difficult (imagine what it's like for him). That's why we're walking for Casey! If we can find a cure so nobody else has to go through this it's well worth it.
Update: My Dad lost his fight with ALS on 5/19/18. We are heartbroken.
Thank you for helping me reach my Walk to Defeat ALS(R) fundraising goal! This is an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.
The past two years have brought incredible advancements in ALS research, expanded access to care for ALS patients, and enabled legislation that impacts the quality of life of patients and their families. WE CAN'T STOP NOW!
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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