We are walking in honor of Art Capener (my dad) who passed away in 2021 of ALS after a 7 month battle. He was truly the best father, husband, and friend. Unfortunately his dad (my grandpa) also passed away from ALS which resulted in my dad being tested for the ALS gene. He tested positive for familial ALS which is only 10% of cases. This means my siblings and I all have a 50/50 chance of having it as well. This is why we walk, fundraise, and raise awareness. We’re praying to find a cure in our lifetime. 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.

That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again. 

The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.

But, we can’t stop now. The key to a cure begins with you. 

Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.