For those who are new to Randy’s Battle, Randy retired from the United States Army in July 2016. Randy was diagnosed with ALS in May of 2017. ALS affects every person differently. Randy has a trach in place and is ventilator dependent. He is able to talk and eat when he has his Passy-Muir valve in place. He no longer walks, but is able to get around in his Cadillac chair. ALS has not bound him to the bed or house. We get out often to see family and friends and attend functions. He attends ALS clinic every three months at the VA in Charleston where he has a team of physicians and therapists. This team follows his progression, makes sure that his needs are met, and anticipates what may be needed in the future. I wouldn’t trade these professionals for all the money in the world. Randy is Blessed to have every piece of equipment, every medication, that is available to a person that has ALS, but you know I would give it all back in a second to have his health back.
Please consider becoming a Soldier in the battle to defeat ALS. Join us on October 7, 2023 in Columbia SC for the ALS Walk. If you can’t join us and put boots on the ground, please consider donating to “Randy’s Team.” Every dollar counts.
Side note: Did I forget to say, “ALS I hate you.”
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.