The world will never be the same... never again. We have lost an amazing man to this terrible disease. Not once did he complain.... not once did he ask why. He kept on smiling... he kept on loving his family and touching our hearts. He was full of life... loved life more than anyone we know. His laugh was contagious and his generousity was unmatched.
We need to let people with ALS know they are not alone. ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities.
With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.
However, we can work together to create a Community of Hope that restores dreams and builds courage. Our community gives strength and hope to our loved ones, neighbors, and friends facing the fear and uncertainty of ALS.
Your gifts will make this possible. Please click the donation button to the right if you want to help other families fighting this disease and contribute to the research of finding a cure.
Thank you for helping us build a Community of Hope and honoring our HERO! Goran has a special place in the hearts of everyone he touched and we will continue to celebrate his life and the amazing person he is!
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The day that not even 'the planner" can plan for
Growing up I had a little bit of OCD... okay ALOT! My dad would certainly tell you that I was the planner in the family. This is probably why at an early age he started calling me "Queen Bee"... In his phone I am saved as "QB"... When he answered he would say "Hi Queen Bee"... It was just the way things always were... I planned and planned and planned... I wanted things to be perfect and I wanted them in order.
When my father was diagnosed with ALS I knew that I had to plan for that dreaded day... the day he left us. I swear every week I had good intentions to go to Amigone... and plan. Planning gives me comfort... But each week I procrastinated. It is probably the one and only thing in my life I kept pushing away off of my "To-Do" list. Well... I never planned... and looking back, I probably couldn't ever have done it. Toby picked me up this morning at 8:30... as we drove to Amigone we both knew what dad wanted... we just knew how he was. It was hard.... it hurt... and I just hate being in those funeral homes...
As we walked out we chuckled.. I looked at Toby and said "dad is looking down on us swearing about how much money we just spent!!!!" On the drive home we decided one thing for sure... After the service there will be coffee AND PAULA's DONUTS! those were his favorite!!! A couple weeks ago he would call me in the morning and ask me to stop there for him... He loved Paula's!
We did it... we made it another day... one day at a time right?!
-Queen Bee :)
by Sue Engasser on Mon, Mar 10, 2014 @ 5:02 PM
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