The world will never be the same... never again. We have lost an amazing man to this terrible disease. Not once did he complain.... not once did he ask why. He kept on smiling... he kept on loving his family and touching our hearts. He was full of life... loved life more than anyone we know. His laugh was contagious and his generousity was unmatched.
We need to let people with ALS know they are not alone. ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities.
With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.
However, we can work together to create a Community of Hope that restores dreams and builds courage. Our community gives strength and hope to our loved ones, neighbors, and friends facing the fear and uncertainty of ALS.
Your gifts will make this possible. Please click the donation button to the right if you want to help other families fighting this disease and contribute to the research of finding a cure.
Thank you for helping us build a Community of Hope and honoring our HERO! Goran has a special place in the hearts of everyone he touched and we will continue to celebrate his life and the amazing person he is!
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Thank you... It truly is humbling
Thank you to everyone for your kind words, support, love and contributions to the ALS BIG GUY fund. Last Tuesday I was driving my dad to the hospital for his second attempt at a feeding tube placement... he was quiet because he was nervous... OK and because he thought I was the worlds worst driver and frequently told me that everytime he got in in my car he was risking his life!!!
.... anyways... we were driving down Maple and he all he said was "what a terrible disease this is... I hope that very soon this disease ends... It is terrible to have it take over your body"... He then went on to try to reassure me that Toby and I wouldn't be subject to this terrible disease... it was like he was trying to reassure himself... That's dad... always worrying about others.
It is amazing how much support we have received.. from all over the world... He truly had such an impact on people everywhere. Today is the perfect day for a snowstorm (other than poor Toby having to plow :) ).... I can sit inside all day and pour my heart and soul into his scrapbooks... pictures.... memorial cards.... It is almost therapeutic for me to sit there... with hundreds of photos of him spread all over the floor.... arranging them...
Thank you again for all of your support... Dad is surely looking down smiling at us all.
- Sue
by Sue Engasser on Wed, Mar 12, 2014 @ 8:47 AM
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