The world will never be the same... never again. We have lost an amazing man to this terrible disease. Not once did he complain.... not once did he ask why. He kept on smiling... he kept on loving his family and touching our hearts. He was full of life... loved life more than anyone we know. His laugh was contagious and his generousity was unmatched.
We need to let people with ALS know they are not alone. ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities.
With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.
However, we can work together to create a Community of Hope that restores dreams and builds courage. Our community gives strength and hope to our loved ones, neighbors, and friends facing the fear and uncertainty of ALS.
Your gifts will make this possible. Please click the donation button to the right if you want to help other families fighting this disease and contribute to the research of finding a cure.
Thank you for helping us build a Community of Hope and honoring our HERO! Goran has a special place in the hearts of everyone he touched and we will continue to celebrate his life and the amazing person he is!
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Trying to adjust....
Easter passed... it's now over... I had so much nervousness, anxiety and sadness with Easter approaching that I really wasnt my normal self. I usually go all out for Holidays... it is something my dad and I had very much in common. This year it felt as though I just wanted it to come and go. Dont get me wrong, I wanted my kids to enjoy the holiday but I was secretly crying inside. It was the first of many holidays without dad... It was so different... The day went better than I had anticipated... I thought I would just cry all day... but it all hit me right after the easter egg hunt. I got through the hunt just fine... but when that settled.. it hit me hard... I had to pull myself together for a few minutes in my moms bedroom. I know the day was hard for her but boy is she amazing. She invited over Leanne's mom as well as Andrew's parents to her house. I mean the woman just lost her husband and she pulled off this amazing day and made it special for everyone. I know how hard it was for sure but she did a great job. Toby.... he is just awesome. He pulled off the egg hunt flawlessly... and then he did the most amazing thing. My father had this wooden face that you attached to the tree, it made it look like the tree had a face LOL... the thing that was great was that it looked just like him... Well my dad never hung it up at the new house, he actually left it at the old house. Well, Toby had gone to get it... and on Easter he got out the ladder and hung it up with the kids... It is almost like its dad watching over us. On Easter Sunday we also lost my husbands Grandmother. .. It was so hard to tell Talon that another amazing person has left this world... but he felt better when I told him "farfar" was welcoming her into Heaven... but Boy.. 2014 has been a rough year! I am hoping the rest of the year is quiet and uneventful.
I keep waiting for it to get easier, for it to finally sink in and stop hurting so much... but the truth is that it hurts more and more each day. Talon has started baseball and everytime I drive him there I think of my dad, and how he would be right there next to me cheering for him... I have asked myself a million times why him... why now?
Tonight I am heading to the first ALS Buffalo Walk committee meeting. I was asked to join the committee and am super excited... but a little nervous that my emotions will get the best of me. One thing is for sure, if I can do anything to try to bring awareness to ALS and help find a CURE i am going to. I wish no family the pain that we have gone through... My hope is for a world with no ALS....
We are over halfway to our goal... but the truth is our goal is neverending... our fight will go on forever.... I miss you daddy.... your Queen Bee
by Sue Engasser on Wed, Apr 30, 2014 @ 4:08 PM
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