The world will never be the same... never again. We have lost an amazing man to this terrible disease. Not once did he complain.... not once did he ask why. He kept on smiling... he kept on loving his family and touching our hearts. He was full of life... loved life more than anyone we know. His laugh was contagious and his generousity was unmatched.
We need to let people with ALS know they are not alone. ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities.
With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.
However, we can work together to create a Community of Hope that restores dreams and builds courage. Our community gives strength and hope to our loved ones, neighbors, and friends facing the fear and uncertainty of ALS.
Your gifts will make this possible. Please click the donation button to the right if you want to help other families fighting this disease and contribute to the research of finding a cure.
Thank you for helping us build a Community of Hope and honoring our HERO! Goran has a special place in the hearts of everyone he touched and we will continue to celebrate his life and the amazing person he is!
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Trying to heal the wounds
I am convinced that when you lose a loved one... you never really heal. Your life will never be the same and the Grieving that is estimated to last about 6 months... well it will last forever. What I am starting to realize is how to pick up some of the broken pieces...and try to one by one glue them back together.
My 27th Birthday was on June 9th... exactly 3 months after my dad passed away. I dreaded the day... even though I know my dad wouldnt want me to... he was always the big celebrator in our family. Although I missed him dearly, had my outburts of tears.... my family came together and made the day really special. I learned that because of him... the way he celebrated our birthdays... my family picked up the pieces and carried on the tradition.
Father's day.... Another really hard day... It was heart breaking to wake up that morning and not be able to call him and tell him I loved him. I felt sad and devastated... I texted Toby and simply said "It sucks not having a dad"... his reply was simply "Yes, it sucks".... I think we both cried while exchanging those texts....Sure.. we celebrated my wonderful husband and father in law... but something was missing... my dad was missing.
Talon's birthday... He turned 6 yesterday.... As Talon opened his presents one by one... he opened a very special one... it was a shutterfly book titled "My favorite memories of farfar".... I poured my heart and soul into it... it was never perfect enough but I convinced myself I would just have to make him more books... because lets face it there are probably thousands of pictures I wanted to insert. When my father passed away I decided that one of the best ways to honor him was to make sure that his grandkids, who he loved more than anything in this world, would vividly remember how amazing he was.... That is when I decided that this year every grandchild will get a Photobook with their favorite memories of Farfar, filled with only pictures of him and the birthday kid.... I know he would love that.... Talon loved his book and I have a feeling it will become his favorite bedtime story!
I guess what I am saying is that we never really heal completely... our hearts never truly mend... there will always be broken pieces and there will always be scars... BUT.... slowly day by day we adjust... and we figure out ways to continue honoring our loved ones... and we learn that even though they arent here on earth... they are forever in our hearts.
I am so looking forward to the ALS walk on August 2nd... it has been such a good outlet for me to be apart of the committee and I love making a difference. We currently have the largest team in Buffalo and have raised over $1300.00. I just cant wait to walk that day with our friends and family... honoring one of the most amazing people we all knew....
Love,
Daddy's girl
by Sue Engasser on Fri, Jun 27, 2014 @ 1:16 PM
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