The world will never be the same... never again. We have lost an amazing man to this terrible disease. Not once did he complain.... not once did he ask why. He kept on smiling... he kept on loving his family and touching our hearts. He was full of life... loved life more than anyone we know. His laugh was contagious and his generousity was unmatched.
We need to let people with ALS know they are not alone. ALS affects more than nerve cells and muscles, it affects families, friends, co-workers, and communities.
With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.
However, we can work together to create a Community of Hope that restores dreams and builds courage. Our community gives strength and hope to our loved ones, neighbors, and friends facing the fear and uncertainty of ALS.
Your gifts will make this possible. Please click the donation button to the right if you want to help other families fighting this disease and contribute to the research of finding a cure.
Thank you for helping us build a Community of Hope and honoring our HERO! Goran has a special place in the hearts of everyone he touched and we will continue to celebrate his life and the amazing person he is!
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A Day to Celebrate Big Guy
On August 2nd 2014 we celebrated Big Guy at the Buffalo ALS walk. I spent the months leading up to the event planning with the ALS walk committee as I now hold the logistics chair for the walk... It was one of the best experiences I have had. I met amazing people, got to help a great cause and most of all... honor my dad.
The meets were held in Orchard Park and I really looked forward to them. The 30 minute drive there and back became my time to listen to the radio and think about my daddy and how much I missed him.
Our Team had over 60 walkers.. we were the 3rd largest team out of 55! Our team alone raised $4,650.00 with the event bringing in over $170,000 for ALS! We ranked in at #7 out of 55 for fundraising. We sported our Big Guy T shirts with swedish flags on the sleeves... It truly was a perfect day. The forecast called for rain... but that morning the sun sure was shining! My dad use to always say that i lucked out with the weather.. every party we ever had the sun shined.... I know that it was him looking down on us! I can't wait for next years walk! It was so touching to have all our friends and family come together for the event... I miss you daddy....
Your girl
Sue
by Sue Engasser on Wed, Aug 13, 2014 @ 12:35 PM
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