Louise's Story:

In 2023, Louise was diagnosed with ALS, which was unexpected and devastating. Louise first started showing mild symptoms during Christmas 2021. Some intermittent slurred speech led our family to consult with a variety of specialists, where initial testing suggested a different, manageable disease (MG). ALS was not even on our radar. Only when medications for MG did not seem to improve Louise's condition, was she diagnosed with ALS. That was a blow, our whole world changed. Louise's muscles weakened and she lost the ability to speak. Social interactions and daily activities became challenging. Meal preparation, walking, showering and dressing were all things she needed help with. Sadly, 11 months after her official ALS diagnosis, she passed away. Louise celebrated her 71st birthday with her loving family just the week before.

Our family hopes to help others who are impacted by this devastating neuromuscular disease by participating in The Move to Cure ALS where funds go towards care programs and supplies, like wheelchairs, and research.

The Larger Impact:

The Move to Cure ALS is the signature fundraising event for the ALS Society of British Columbia. The fun, family-friendly events unite people to celebrate hope for a future without ALS, honour those we have loved and lost, and support the people and their families living with the disease by "Moving" together towards a cure for ALS, whether walking, running, rolling, supporting or being present virtually or in person.

All funds raised stay in BC and the Yukon to support people living with ALS, patient care and ALS research through PROJECT HOPE. Our goal is to end ALS through a world-class ALS Centre at The University of British Columbia. 100% of net proceeds to the ALS Society of British Columbia will remain in BC to support patient services programs (60%) and research (40%) through PROJECT HOPE.

Thank you for joining us in supporting the ALS Society of British Columbia.