We believe we are at the crossroads of unprecedented hope. There are over eighty (80) promising ALS therapies in the late stages of the clinical trials. Tragically the reality is all of this activity has been largely happening outside of Canada. British Columbians diagnosed with ALS must travel, at their own expense, to other provinces and countries to participate in ALS clinical trials. That is their only hope.
The two goals for PROJECT HOPE are:
Goal # 1
To establish an ALS Research Professorship at UBC which will be held by a Clinician/Scientist to champion and run the program. This will be funded by an endowment investment of $5.3 Million. This endowed position will exist in perpetuity.
- We are extremely grateful for the generous support of PROJECT HOPE and are pleased to announce the $5.3 Million goal has been achieved! Special thanks to the Province of BC for contributing $3 Million. The remaining $2.3 Million was donated by British Columbians.
- Trust and Gift Agreements between the ALS Society of BC and the University of BC are in place to fund the ALS Society of BC ALS Research Professorship.
- The recruitment process to hire a senior ALS Clinician Scientist to champion the project is underway.
- UBC has committed funding through the President’s Academic Excellence Initiative to support the recruitment of a senior ALS clinician-scientist and bring clinical trials to patients with ALS faster.
“The partnership between the ALS Society and UBC is an historic leap toward meaningful change for all those living with ALS here in BC and beyond,” said Dr. Jon Stoessl, professor and head of UBC’s department of neurology. “Patients are counting on us to improve access to treatment, develop new therapies and move closer to a cure for ALS. Local patient participation in clinical trials will be critical to achieving these bold aims.”
Goal # 2
The ALS Professorship will strive to create an optimal environment integrating research and clinical care.
- It is our dream to END ALS through creating a world class ALS Centre at UBC. To that end, the ALS Society of BC has pledged to UBC to raise an additional $20M to see this come to fruition.
Click here for more information, to donate, or contact:
Wendy Toyer, Executive Director
Office (604) 278-2257 ext. 222
Cell (778) 999-6257